EXPPECT IN THE NEWS

Woman & Doctor

LEARNING THROUGH LIVED EXPERIENCE: PARTNERING WITH PATIENT FACULTY IN THE VIRTUAL LEARNING ENVIRONMENT

Society of Academic Continuing Medical Education Annual Meeting, February 2022

ExPPect was thrilled to partner with FACTORx to showcase our exciting patient-engaged continuing medical education program on the use of biologics and biosimilars in the management of IBD and RA.  Powered by patient-generated health data, and delivered by patient and clinican faculty, this course provided invaluable guidance to learners on co-management of complex disease.

See the 2022 SACME Presentations here.        

Microscope

PRECISION FOR WHOM? PARTNERING WITH PATIENTS TO ENSURE THAT PRECISION MEDICINE TARGETS WHAT MATTERS

LEAPS Research Brief

LEAPS, the Learning Ecosystems Accelerator for Patient–Centered, Sustainable Innovation, is a multi-stakeholder creation platform where patients and other experts come together to pioneer solutions for the healthcare problems that most plague us.  Initially housed at MIT, and now at Tufts Medical Center, LEAPS has spent the past several years focused on solutions generation in the Rheumatoid Arthritis community.  This Research Brief provides a bird's eye view of the ways RA patients, including ExPPect's founder Suz Schrandt, were involved in LEAPS' work, and a historical and prospective commentary on the critical function of patient engagement.  The brief is available here.

Friendly Handshake

THANKING PATIENTS FOR THEIR ROLE IN RESEARCH IS PART OF CREATING WIDER CULTURAL CHANGE

BMJ Opinion

ExPPect Founder Suz Schrandt had the opportunity to collaborate with Dr. Michael Kanter on this BMJ piece, giving voice to the often unsung role of patients who participate in medical research.  A strange dichotomy, that while patient engagement has exploded over the past two decades, placing patients in leadership and partnership roles like never before, those individual patients who contribute their data, or join clinical trials and other studies, are often left uninformed of research results, and unthanked for their involvement.  Reaction to this piece was positive and widespread, with at least one large health system adopting a policy to always thank patients in publications.  Read the opinion piece here.

Conference Room

KEYNOTE, A CALL TO ACTION: PATIENTS AS PARTNERS IN HEALTHCARE PROFESSIONS EDUCATION AND PRACTICE

Association for Medical Education in Europe

ExPPect founder Suz Schrandt, shared the stage with powerhouse patient safety advocate Sue Sheridan for this keynote focused on urging wider and more robust involvement of patients as faculty throughout pre and post graduate clinical training.